Greta Granö

Hi there!

I’m Greta, the person who got the initial idea to create this page. I’m known for crying, being silly and using the word “little” a lot. I’m from Finland and am currently 23 years old.

I got sick with ME when I was 14 and the illness turned severe at 16. That makes around nine years of experience with ME, seven of those being severe. At the moment I’d say my illness is moderate to severe.

This illness has changed my life. I was an active child who loved going to school, played multiple instruments, wrote music and dreamt of an academic career. After first getting sick I kept attending school until my symptoms became too debilitating and I lost my ability to walk and soon after that the ability to sit up for more than 5-10 minutes at a time. My ME had turned severe.

ME/CFS is a debilitating illness at any severity, but I think there is something especially isolating when it becomes severe or very severe. It’s a specific type of suffering that I couldn’t possibly have imagined before getting ill. It can feel like no-one understands or hears you, at least it did to me, until you find other people who know this specific suffering too. I’m forever grateful for the community of people with severe ME and I feel a desperate need to give back to these people as much as I just can.

I wish that this project can simultaniously be a connecting, loving, creative place from us to us, but also a scream to everyone else: We beg you to see us.

Greta