What is ME/CFS?

ME/CFS is a complex, chronic illness often triggered by an infection. ME is classified as a neurological disease by the World Health Organization, though its cause remains unknown.

The acronym ME stands for Myalgic Encephalomyelitis, and CFS stands for Chronic Fatigue Syndrome. Both names are used, most commonly together, but the name Chronic Fatigue Syndrome alone can minimize the complex and debilitating nature of the illness.

The primary symptom of ME is post-exertional malaise (PEM), characterized by the worsening of symptoms following exertion.

ME/CFS is generally classified into four levels of severity: mild, moderate, severe, and very severe. Having ME that is considered mild can be a life-changing debilitating condition that significantly impacts daily function, with 75% of all patients being unable to work.

In its most severe forms, this condition becomes even more disabling. The 25% of those with the most severe forms of ME/CFS are often housebound or bedridden, with very little energy. Many rely on caregivers to aid with daily activities such as hygiene and eating. Some with very severe ME are unable to tolerate light, sound, or touch. Others are unable to speak, digest food, or breathe without assistance. They are some of the sickest people on earth.

There are no approved cures or treatments for ME/CFS.